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The postman rang the doorbell
and honk at the gate.
Strange. I wasn’t expecting any
mail or parcel today. I ran to the door and opened it. The postman pointed to a
yellow-coloured envelope that he left at the pillar of my gate and sped off.
I looked at the envelope; it has
my name written on it. On the left side, I saw “Phoenix Society”.
Oh! It is from USA. This is
I was excited and curious at the
same time. What did they send me? I ordered nothing from them. Also, the postage from USA to Malaysia can be expensive.
Inside the envelope, a
book and a card.
The book, card and envelope
It was heart warming reading the messages in the card. I felt touched
by their words of encouragements. I truly appreciate them for taking the time
and effort to send me the gifts.
Hand written messages inside the card
Message inside the book
Alan Breslau founded the Phoenix
Society in 1977. He was extensively burned in a commercial
airliner. As a young boy, he realised the importance of peer support
for those with burn injuries and after working with burn survivors for many
years, he officially incorporated The Phoenix Society for Burn Survivors.
Today, the Phoenix peer support
through Phoenix SOAR (Survivors Offering Assistance in Recovery) is available
in over 70 burn centers across North America. The Phoenix World Burn Congress
is attended annually by nearly 1000 members from the burn community, making it
the biggest gathering in the world for burn survivors.
They are reaching out to other
burn survivors around the world with their vision :-
Uniting the voice of the burn
community across the globe to profoundly advance lifelong healing, optimal
recovery, and burn prevention.
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…