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do not understand the pain and suffering that a burn survivor goes through,
sometimes it may continue for years from the initial burn incident. The
complications of wound healing and also contracture sometimes get into the way
of healing and makes it difficult for a burn survivor to lead a normal life. Treatment
and managing the after effect of burns can be a lifelong process.
Furthermore, burn care is one of the most complicated and expensive treatment
at the hospital.
nearly died in a fire at 6 years old. Since then, she has gone through numerous
surgeries throughout her young life.
the challenges and odds against her, Fatimah entered high school and continued
with her studies at the University of St. Thomas. However, her studies were often
disrupted with her medical needs.
is a kind and caring lady who often shares her experiences with newer burn
survivors on how to cope with their burn injuries. Although she has her own
life challenges, she often motivates and encourage people not to give up,
especially those who are undergoing dark moments in their life.
of Fatimah’s hobby is cooking, she loves preparing delicious food for her
family. She dreams of starting a restaurant business. Some of the food cooked by her:-
at 27 years old, she still has to undergo an operation on her head as her wound
has gotten deeper and could not heal. The last skin graft did not stick,
leaving her skull exposed. Going for a surgery is stressful enough, with the
added expenses, she constantly worries about finances.
help Fatimah to collect enough funds for her next surgery, give her a chance in
life, with hope, this surgery would make a difference. She has set up a go
fundme account:- Fundraiser by Fatimah
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…