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do not understand the pain and suffering that a burn survivor goes through,
sometimes it may continue for years from the initial burn incident. The
complications of wound healing and also contracture sometimes get into the way
of healing and makes it difficult for a burn survivor to lead a normal life. Treatment
and managing the after effect of burns can be a lifelong process.
Furthermore, burn care is one of the most complicated and expensive treatment
at the hospital.
nearly died in a fire at 6 years old. Since then, she has gone through numerous
surgeries throughout her young life.
the challenges and odds against her, Fatimah entered high school and continued
with her studies at the University of St. Thomas. However, her studies were often
disrupted with her medical needs.
is a kind and caring lady who often shares her experiences with newer burn
survivors on how to cope with their burn injuries. Although she has her own
life challenges, she often motivates and encourage people not to give up,
especially those who are undergoing dark moments in their life.
of Fatimah’s hobby is cooking, she loves preparing delicious food for her
family. She dreams of starting a restaurant business. Some of the food cooked by her:-
at 27 years old, she still has to undergo an operation on her head as her wound
has gotten deeper and could not heal. The last skin graft did not stick,
leaving her skull exposed. Going for a surgery is stressful enough, with the
added expenses, she constantly worries about finances.
help Fatimah to collect enough funds for her next surgery, give her a chance in
life, with hope, this surgery would make a difference. She has set up a go
fundme account:- Fundraiser by Fatimah
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
International Women's Day is here once more. Some celebrated it. Some feel should not as a celebration of womanhood should be everyday. To me, these days can be served as a reminder to us. We can be preoccupied with our responsibilities, activities, our families and of life that we sometimes even forget our own birthday.
Today I reflected on the women who have impacted me. Because of these women, they inspired me to write a woman song in 2018.
Women Song sang on 8 March 2020, dedicated to all women readers here. I wrote it in 2018. There are so many women out there who made a big impact on me over the years since a teenager until today. Let me list them whom I can remember offhand:-
1) Anne Subashini - founder of The Inclusive Outdoor Classroom. I have the privilege to get to know her since drum circle days. Her passion is infectious. Her faith, her belief that there should be no division between children no matter of their backgrounds, no matter of their health conditioning is emp…