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His high chirpy voice reaches my ears as Patrick swayed his body slightly while singing. Eyes sparkling, his body wriggling like a worm moving on the ground. His lips parted in a smile while he kept on going "I'm still standing."
It is the latest song he likes. His favourite songs can be seasonal. At one time it was Baa Baa Black Sheep. Then another phase he had was Five Little Monkeys. Another time it was Humpty Dumpty.
It is cute seeing him in this state; full of excitement, wonder of Life. Sometimes he can spontaneously laughed or dance on the spot if he hears any song he likes.
Today it has been 7 months since his liver transplant last year. Eileyn has observed the big changes in Patrick before and after the transplant in her recent blog post. Her blog also made me reflect on this young child who is suffering from liver failure. He is two years old named Abdi. The doctors have assessed him to have 6 months to live. His life supported on medication.
Abdi ( photo taken from Suzanne Ling's Facebook post)
I have a few friends who highlighted his case to me by giving the Facebook posts.
Seeing him in photos and video made me reflect on my journey with Patrick; when we have to rush for time, hoping and praying we have enough time to do the liver transplant. It was emotional, stressful and an intense experience for any parents to go through. I empathize with Abdi's parents.
I am touched by Suzanne Ling's heartfelt appeal to save this young's boy life. This made me reflect on the many humanitarians among my family members, my in laws, my friends and strangers who step forward to help to save Patrick's life. By sharing in social media, Whatsapp and more. We feel moved and emotional by the help given to us unconditionally. We were so thankful and grateful for the fast manner the fundraising had been for Patrick.
Our thank you video to humanitarians who
contributed to save our son's life
Time is ticking for Abdi now. Like it had been before for Patrick. Please in the goodness of your Heart to pray for him, to have enough time. For the fundraising to reach its target. For his parents continuously to be strong to face this challenging experience with their son, Abdi. If you have some cash to spare, please contribute any amount. Each will contribute to save his life.
He may be young. He deserve to have a second chance at life.
Abdi, I have yet to meet you in person. I have observed you in photos and videos taken by the people whose heartfelt words try to save your life.
We are standing with you now, Abdi. We are trying our best help you to beat the clock so that to have sufficient time for you to have that life saving surgery. The funds raised are also for medications and treatment to manage his disease. I hope arrangements to do the liver transplant can be arranged as soon as possible.
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word. Mummy supporting and loving baby We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools." My sister in law remarked to me while I tiredly changed Patrick's diapers. Menta
I have been encouraged by Cordelia Lee to explore my creative side, she has inspired me to use poetry as a form of self-expression. I find that poetry allows me to express myself in a different way. Though I have to admit, it is still a struggle for me to find the words to express myself. Recently, I was moved for the first time to submit my poetry for an anthology http://www.singlitstation.com/thousandcranes . (Image of poster taken from singlitstation.com) The theme and subject matter somewhat speak to me. The topic of coping with illnesses and death can be a taboo topic and yet all of us will die one day. On the other hand, if we were given a life of immortality without pain and suffering, can we truly live? Will we appreciate our moments in life and the opportunities given to us? Or do we feel empty without a purpose? Indeed, this is not an easy question to answer. I felt good after writing the poem. It gave me a different outlet to express m
I looked at his pale face and frail body on the hospital bed. Lines and tubes on his legs and neck. There was a bag at the right side with yellowish looking water inside. The liquid was not urine but water which had to be pumped out from his stomach cavity. It was difficult to see someone whom you have known since young to look so weak. He had lost weight and aged considerably. It was the second day of Chinese New Year. My sister and I took a trip down to Kuala Lumpur to visit relatives. We visited a cousin at the High Dependency Unit, he had liver cancer and was complaining of diarrhea. Visiting hours were 11.30am to 1.30am and 5.30pm to 7.30pm. We had to take turns going in as only 2 guests at a time are allowed. Despite having the experience of a prolonged stay at the hospital and being immobile, I was tongue tied. I didn’t know what to say or how to comfort him. I could only share with him of my previous struggle at the hospital. On our second visit bef