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His high chirpy voice reaches my ears as Patrick swayed his body slightly while singing. Eyes sparkling, his body wriggling like a worm moving on the ground. His lips parted in a smile while he kept on going "I'm still standing."
It is the latest song he likes. His favourite songs can be seasonal. At one time it was Baa Baa Black Sheep. Then another phase he had was Five Little Monkeys. Another time it was Humpty Dumpty.
It is cute seeing him in this state; full of excitement, wonder of Life. Sometimes he can spontaneously laughed or dance on the spot if he hears any song he likes.
Today it has been 7 months since his liver transplant last year. Eileyn has observed the big changes in Patrick before and after the transplant in her recent blog post. Her blog also made me reflect on this young child who is suffering from liver failure. He is two years old named Abdi. The doctors have assessed him to have 6 months to live. His life supported on medication.
Abdi ( photo taken from Suzanne Ling's Facebook post)
I have a few friends who highlighted his case to me by giving the Facebook posts.
Seeing him in photos and video made me reflect on my journey with Patrick; when we have to rush for time, hoping and praying we have enough time to do the liver transplant. It was emotional, stressful and an intense experience for any parents to go through. I empathize with Abdi's parents.
I am touched by Suzanne Ling's heartfelt appeal to save this young's boy life. This made me reflect on the many humanitarians among my family members, my in laws, my friends and strangers who step forward to help to save Patrick's life. By sharing in social media, Whatsapp and more. We feel moved and emotional by the help given to us unconditionally. We were so thankful and grateful for the fast manner the fundraising had been for Patrick.
Our thank you video to humanitarians who
contributed to save our son's life
Time is ticking for Abdi now. Like it had been before for Patrick. Please in the goodness of your Heart to pray for him, to have enough time. For the fundraising to reach its target. For his parents continuously to be strong to face this challenging experience with their son, Abdi. If you have some cash to spare, please contribute any amount. Each will contribute to save his life.
He may be young. He deserve to have a second chance at life.
Abdi, I have yet to meet you in person. I have observed you in photos and videos taken by the people whose heartfelt words try to save your life.
We are standing with you now, Abdi. We are trying our best help you to beat the clock so that to have sufficient time for you to have that life saving surgery. The funds raised are also for medications and treatment to manage his disease. I hope arrangements to do the liver transplant can be arranged as soon as possible.
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…