A week ago, the blood test results revealed bilirubin levels at 215 ( his jaundice a big drop from 275 levels of November 2018 reading) and INR was at 5.7. The unusual high levels of INR was a concern because it may be a sign of liver damage.
Today's reading revealed bilirubin at 295 ( what?!!) and INR at 1.3, which is still not within the normal range yet. The normal range would be at 1.1. That meant it was a deficiency of vitamin K after all. However, his jaundice went up a big leap. It was also the highest level of bilirubin reading until today.
If you could see my face now.
|speechless at the blood test results|
Prof Ng educated us based upon previous babies cases, cases where they must go for a liver transplant was based upon a few factors. Their level of bilirubin was very high ( one baby was above 500 in bilirubin reading). Their quality of life has been affected (loss of appetite, very fussy, fatigue, ascites among others) and they were starting to lose weight although they were on special milk formula. To Prof Ng's observations, Patrick has been slowly and steadily gaining weight. In fact, his weight, his height and head circumference has reached to a normal range for his age group. (Finally! We have been waiting for this day for a long time.)
Prior to last week's blood test, Patrick's stools colours was starting to be under the normal range, identified as pigmented.
|Colour of the stools within normal colour range|
|Colour stools chart|
|Pale yellow coloured stools|
My husband and myself would analyse on possible reasons why the different levels of jaundice in one week.
The decision for a liver transplant to be postpone again.