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His lips quivered while he judged the height difference between the kitchen and the dining hall floors. The kitchen floor level was approximately 2.5 inches lower than the dining hall floor.
Patrick's eyes looked uncertain while he made a frustrated sound at me. I was sitting on the dining hall floor, gesturing him to come near me. He was on all fours on the kitchen floor. Then he positioned his two hands onto the dining hall floor while the half of his body on the kitchen floor. He raised one leg in the air, uncertain on how to position his leg to the other side. Then his leg came down. He sat up, stared at me with a protesting whine.
"Don't give up, Patrick. You can do it."
I have been trying to empower him with positive songs.
Song Title: Never give in
Written and sung by me
He placed himself on all fours again. Patrick tried to make another attempt. His body language was saying, "I can't". Again, he sat down with a protesting cry. He gestured his hands to me, asking me to carry him.
"Patrick, don't give up so soon. You can do it. You must keep trying. No matter what difficulty you face in life, you must not give up. You can do it. Try, Patrick!"
By then, my husband sat next to me. Both of us kept on encouraging him to keep on trying.
Patrick looked at both of us.
Then he positioned his body again on all fours. Although he still has this lacking in confidence demeanour, he felt encouraged to make another attempt.
He positioned his two hands first onto the dining hall floor. His raised leg in an attempt to go over to the dining hall floor. His leg was hanging in mid air for up to two seconds. Then down his leg went, onto the other side. His entire body finally moved to the dining hall floor.
He sat up with a sunbeam smile. We hugged him and acknowledged his courage.
Since then, he lost his fear of climbing over the difference between the floor heights.
I wish to encourage him to have a non-quitter mentality in face of adversities. For his disease will come with challenges.
I believe in you, Patrick. You can overcome anything. You can do it!
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…