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Patrick jaundice level was the same as last week which was at 229. However, his weight dropped from 5.4kg (Monday, 2/7/2018) to 5.3kg ( Thursday, 5/7/2018).
The colours of his stools, on occasion was under "good" as in accordance to the stool chart and the doctor's assessment.
Baby Stool Colours Chart
On a good note, his appetite during the day has increased. He appeared to be growing more active. His activeness went much higher than usual. So much so until I had to ask Dr. Ng on my son's hyperactivity. Dr Ng assessed that it was because his nutrition level had improved. This reflected in his activeness, which was a good sign.
It was my mission impossible in trying to stop him from experiencing his trauma of re-insertion of his tube. It lasted for almost a week. My reflexes needed to be a lot faster than usual. Even when I am in a dazed mood especially after waking up from my sleep, I have to be fast in my reflexes.
Despite the fact that Patrick's growth in weight was small, however, to my surprise, his growth in personality appeared to be growing very well. He had grown to be more talkative and socialised even with the doctors and nurses. Whom he usually had an aversion to.
His blood test was done weekly. One section of the blood would identify whether it was an indication of a beginning of a liver failure. It used to be on a normal range. Last Thursday's blood test revealed that it had entered into the borderline range. The test is called INR (International Normalised Ratio). It is done to check whether the person have a blood clotting problem.
Doctor prescribed vitamin K for Patrick. It was to find out whether he had vitamin K deficiency or signs of the liver failing.
By next week's blood test, we will know whether Patrick would still be continued on monitoring stage or he will undergo preparation for a liver transplant.
I have to admit, it had been a roller coaster ride. A test of Patience for us. For the past few months, the doctor advice was maybe the next appointment a decision for transplant as Patrick did not appear to have any significant in improvement. However on each appointment, the conclusion would be not yet, as his condition was not worsening.
By next week, this decision arises again. No matter the results, both myself and my husband will take courage, faith and strength to do what we can for Patrick.
I had been appreciative of my friends' prayers, kindness, efforts, love and dedication for Patrick's especially.
Even in this hospital, there were a few mothers who blessed Patrick. Especially one particular mother whose baby daughter was in a more serious condition than Patrick. I called her Mummy V.
Whenever we bumped into each other especially in the pantry, she kept talking about God to us especially to Patrick. That God loves all children. When Mummy V mentioned that "God loves you" to Patrick, he automatically gave a big smile, as if he understood. As she continued talking of God to Patrick, she also mentioned of Jesus..something in the lines of "In the name of Jesus, He would heal you etc.."
Amazingly, Patrick listened attentively and appeared to acknowledge her by baby talk at the end of her prayers for him.
This mother's baby daughter was 6 months old at 1.8kg. She was born premature. Many tests were done. However, nothing was discovered as to the cause of her daughter's state. Many special formula milk were prescribed by the doctors and most could not help her daughter in gaining weight. It can be very expensive too. She shared one tin of a special formula milk can cost up to RM1,500.00 per week.
I was shocked by the expenses. I was concerned whether she could afford it. She shared that there are charitable fundraisers for milk powder. I felt relieved in hearing that. From what I understood, her husband works as a government servant and she herself, a nurse. Both are not making a big income that can cover the special milk formula expenses.
I am experiencing the best of Humanity, even at the hospital here. Feeling inspired, hopeful, grateful.
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word. Mummy supporting and loving baby We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools." My sister in law remarked to me while I tiredly changed Patrick's diapers. Menta
I have been encouraged by Cordelia Lee to explore my creative side, she has inspired me to use poetry as a form of self-expression. I find that poetry allows me to express myself in a different way. Though I have to admit, it is still a struggle for me to find the words to express myself. Recently, I was moved for the first time to submit my poetry for an anthology http://www.singlitstation.com/thousandcranes . (Image of poster taken from singlitstation.com) The theme and subject matter somewhat speak to me. The topic of coping with illnesses and death can be a taboo topic and yet all of us will die one day. On the other hand, if we were given a life of immortality without pain and suffering, can we truly live? Will we appreciate our moments in life and the opportunities given to us? Or do we feel empty without a purpose? Indeed, this is not an easy question to answer. I felt good after writing the poem. It gave me a different outlet to express m
I looked at his pale face and frail body on the hospital bed. Lines and tubes on his legs and neck. There was a bag at the right side with yellowish looking water inside. The liquid was not urine but water which had to be pumped out from his stomach cavity. It was difficult to see someone whom you have known since young to look so weak. He had lost weight and aged considerably. It was the second day of Chinese New Year. My sister and I took a trip down to Kuala Lumpur to visit relatives. We visited a cousin at the High Dependency Unit, he had liver cancer and was complaining of diarrhea. Visiting hours were 11.30am to 1.30am and 5.30pm to 7.30pm. We had to take turns going in as only 2 guests at a time are allowed. Despite having the experience of a prolonged stay at the hospital and being immobile, I was tongue tied. I didn’t know what to say or how to comfort him. I could only share with him of my previous struggle at the hospital. On our second visit bef