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Each time I walked pass the room, the lady noticed me and smile. I responded the same. Today, the last day of my stay. I decided to go beyond a smile.
This time, I walked into her room. Our eyes met, our smiles to each other. Her baby in an incubator.
"Hi. I always hear your baby crying. Is she ok?"
With sad eyes, she replied, "Likely because she is hungry. She is fasting."
This was the NEC baby which I learned earlier from a nurse.
Before I introduced myself to her, there were days I kept hearing this voice which appeared to sound these words "there,there, there, there..." whenever the baby cried. It can be day. It can be night time, even during sleeping hours.
To me, this represented how loving was that mother to her NEC afflicted baby
We shared our babies' health condition.
I shared that whenever I hear her baby's cry, I can feel her baby's pain and suffering
"As mothers, we feel other babies' pain as well. Not just our own."
Before we parted, she said prayers for my son's well-being. I offered the same for her baby too.
As I returned to my room, I reflected. There were so many strong mothers. Courageous even. To face the reality of a sickly child is not easy. The sleepless nights. Mental and emotional exhaustion. Faces sometimes revealed the state of physical exhaustion. Despite that, a gentle smile of a strong mother always rises, like the sun at dawn.
Some part of me wanted to give a tribute to these mothers. Sometimes I did, with words of encouragement and acknowledgement for what they have done. I feel I should do more. I shall know later what to be done. For now, Patrick is my focus.
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…