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I woke up earlier due to my son's discomfort. With my rocking, he finally melted in my arms with bliss.
In the silence of the early morning, I overheard the next room's baby cries.
The baby had always been crying; I wondered why out of concern. It sounded to be in much discomfort and pain.
The nurse came in to check on the bag that was attached to my son's tube. He had been on this ten to twelve hours milk marathon nightly. The nurse will come in to top up the milk whenever the milk finished in the bag.
"I noticed the baby in the next room always crying. Is the baby having some kind of condition?"
The constant baby crying I heard next door during my hospital stay
Nurse replied, "the baby is fasting for seven days. How do I explain this? The baby has a condition medical condition called NEC."
"NEC? Let me Google."
My eyes were shocked as I read the words from Wikipedia.
'Necrotizing enterocolitis ( NEC) is a medical condition where a portion of the bowel dies. It typically occurs in newborns that are either premature or otherwise unwell. Symptoms may include poor feeding, bloating, decreased activity, blood in the stool, or vomiting of bile.'
I turned to the nurse, "This sounds serious."
"It is. Earlier, X-ray was done on the baby. The bowel did not appear to deteriorate further."
I inquired, "how old is the baby?"
"14 days old."
After she finished her duty, she returned to her nursing post while I returned to my thoughts.
Suddenly I have this feeling and thought at the same time.
I will be leaving soon. My singing had always been a comfort to my son.
From tomorrow onwards until the time we discharge from the hospital ...I decided that I will be singing for the mothers and babies of this ward.
From the unexpected feedbacks that I had received, some mothers shared with me that they felt good although my singing was not intended for them.
So much pain here. I cannot take away their pain. I am not someone who have the ability to create such miracles.
All I can do for them would be to sing from my heart and let the melody reached out to those who needed it.
I am not sure whom I would touch with my voice. I sincerely hope that it would not cause unnecessary disturbance.
I hope that my small gesture can give them a temporary distraction from their suffering, and some Light in spite of everything.
Let my Heart guide me to sing.
God, please guide me to sing for the wounded hearts.
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…