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Today, I could not believe that Patrick had managed to charm one doctor, whom I always considered as having a sour-ish/frowning face. I have never seen her smile before until her encounter with Patrick today.
She noted the lighter colour of jaundice on his skin compared to the first time he was admitted. Then she discussed on the action plan for Patrick with me at home, once we are discharged.
Patrick suddenly voiced up his "opinion". This startled the doctor. I explained to her that sometimes Patrick wants to be a part of the conversation. As if on cue and as if he understood, Patrick added more of his "opinion."
Then I saw a slight twitched on her lips. As if it was starting to smile.
As our conversation continued, Patrick continued giving his opinion or two
All of a sudden, he raised his body and made attempts to stand up. I supported him with both hands. Again I explained that Patrick wanted to "take a closer look at you, doctor." I felt like a baby translator.
Finally, a real smile. She approached Patrick as he stared intently towards her way. I was not sure whether he was smiling to her as well. As I was facing his back. Her fingers gently touched Patrick's chin. Her features suddenly soften. This Patrick, how did he managed to do that??
To me this represented the smiling doctor
After the doctor's meeting in our room, I went to the pantry with Patrick. He was in the stroller waiting for me to make milk. He would cry now and then as if signaling to me..."I am hungry. Where's my milk?"
At the same time, there was a nurse pouring water into a big metal water heater. Suddenly, Patrick noticed the nurse and called out to her. She did not know and continued with her work. Again, Patrick called out to her. I alerted the nurse this time.
When Patrick noticed that the nurse was looking at him, he suddenly gave her a big smile. Until the nurse could not help but smile back in response. While I prepared his milk, Patrick was continuously flirting with the nurse. With his smiles and cooing baby talk.
The nurse was smiling more and more, enjoying Patrick's presence.
"Good mood, today, huh?"
To that, Patrick have an even bigger smile. As if in reply to her question.
Oh, my son.
I should start preparing myself...To lock up my door in case his charms attract too many ladies.
Oh yes, maybe I should start investing extra locks.
Last week, I
visited a friend who is suffering from Neurofibromatosis type 2 (NF2), a hereditary condition that causes her body to produce multiple tumours
throughout her life. Link to Yvonne's blog .
Photo was taken from her Facebook She
was supposed to go to the United States of America in May 2018 for a
cervical spine surgery. Unfortunately, before the trip, she fell on
her back and hit her head. She had to undergo a critical brain surgery instead
in Kuala Lumpur. The money she collected for the surgery in USA was all spent
on the brain surgery.
When I saw her,
the first thing I noticed was the protruding feeding tube at her stomach. Food
had to be
inserted through the feeding tube. Yvonne is deaf and blind. She is still bedridden and immobile as
a result of the fall she had in May 2018.
with Yvonne, I had to write an alphabet at a time, slowly on her palm. If she
doesn’t get the word, it must be
written all over again. It is best to use few simple w…
We could not believe how fast the funds came in after we uploaded our video appealing for funds to Patrick's liver transplant surgery fees.
I admitted that money was one big worry for without it, the surgery would not proceed. Once HOC set up the appeal on our behalf, I prayed. I prayed hard to God.
Suddenly a thought came. A video of us as a family, making a plea to friends, family and public. To save Patrick by donating to his surgery fees.
So, we quickly set it into motion on 22 May 2019.
I could not imagine the responses came beyond Malaysia - Australia, Singapore and more. From people whom I had not talked to for a few years, willingly came forward to donate, send a kind word, prayers and spread the video to their friends.
Before we go forward to the public, another worry I had was my mother. She has anxiety over Patrick. There were times I had to calm her down, assure her everything shall be fine when I admit I do not actually know whether it is so. I don't wish for my mu…
The birth of Patrick changed my marriage life from the two of us to the three of us, a family. We were excited, happy, worried followed by all kind of emotions for our baby son. So many things to learn, to experience. Breastfeeding, constant thoughts on our baby's well being especially when his jaundice appeared to rise during his first month. The lacking of sleep. There were moments I observed his breathing while he slept. We were amazed by every new mannerisms that Patrick displayed. We were so charmed when he first smiled to us. I would observed how gently my husband would treat Patrick and how Patrick would looked up to him, listening to his every word.
We were enjoying ourselves as new parents until something happened in the middle of November 2017 that changed our lives forever. "There is something not right with his stools."
My sister in law remarked to me while I tiredly changed Patrick's diapers. Mentally I can be exhausted as new mothers would be. We visited my s…